My pleasure, feel free to post follow-up as you get it. Happy to comment further.
Dr. Jordan Weinstein
Hi Dr Weinstein,
It was a few years ago when I started this thread but I remembered that you had been quite helpful and I have been seeking more opinions on the updates of my condition.
Since our conversation, I've had a kidney biopsy done and several tests and plenty of bloodwork.
I've attached my biopsy report as well as the results from my last blood/urine test.
Some things to note:
At one point, my triglycerides shot to 12 mmol/L, so I was put on bezabifrate 400mg daily and that has brought it down to under 2
My cholesterol was high as well and that dropped down to normal with the medication in addition to crestor 10mg daily
I do however have some myalgia like symptoms, which I'm not sure whether is due to my high stress levels or the bezafibrate medication but I have constant muscle twitching and spasms, sometimes very painful mostly in my back but can happen anywhere, especially when I sleep.
I'm also on 5mg ramipril daily based on the recommendation of my nephrologist, who I haven't been able to get a hold of for a follow up for almost a year now.
So I'm not really sure where to go from here. I would prefer not to be on so many medications especially at this age, but am also concerned about the progression of my nephrotic syndrome.
I would appreciate any guidance or suggestions.