I had Good Pasture Syndrome at age 11 and as a result, my kidneys were damaged. I am currently 41 (M) and have an eGFR of 32. My creatinine is 202 and I am quite stressed about my declining function and increasing creatinine. My blood pressure is fine and I take Coversyl 4mg per day (just increased to 8mg to protect kidneys) and allopurinol to prevent gout. Interestingly, I do not know if I should take 4mg twice a day or one 8mg dose in the morning. I do not smoke and am not obese. What can I do to increase my function and reduce serum creatinine? Should I restrict protein, salt, phosphorous, stop drinking all alcohol, avoid soda, etc.? I have read recently that Vitamin B1 (Thiamine) can help but I just have too much information. If you were in my shoes, what steps would you take to ensure your function remains stable for as long as possible?
Thanks for your help and tomorrow, I can provide more details on my last blood test to add context.